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I told him about the nucleotides, the genetic test, the prognosis. I told him that atrophying of basal ganglia starts years before symptoms present, and that right now—in this car, in this moment—parts of my brain were dying, parts that I didn’t know I needed, but parts that I would never, never be able to get back. I told him that there wasn’t an emotion or an impulse or a stumble that I could completely trust; I told him that one day—if I let it—everything I did and said and thought would be nothing more than the entropic implosion of a condemned building or a dying star.

LORENZO: Let me tell you a story, Tilly. A patient of mine – he thought if he urinated, he would flood his entire village. So he could not urinate! And this was very painful to him. So I tell him a little white lie, I say to him, “Sir, your whole village is on fire.” And suddenly he feels free to urinate. He feels, through this very ordinary physical activity, that he is saving his village again and again.

TILLY: Huh.

LORENZO: Are you afraid of putting out the fires?

I draw the curtains.     The room darkens, but

the mirror still reflects          a crescent moon.

I pull        the crescent out,          a rigid curve

that softens                    into a length of cloth.

I wrap the cloth around                     my eyes,

and I’m peering    through a crack in the wall

revealing                        a landscape of snow.

And the body is beautifully there, like hoarfrost.

Tears on its face now glimmering like dimes

falling from a slot machine, or a stream, thought lost,

that breaks through fresh snow at wintertime.

From Brother Salvage, posted by permission of the University of Pittsburgh Press

At my desk, with my pen, pencil, markers, ruler, and thick white paper, I was in command. And when I drew the superhero who was my alter-ego, I gave him—i.e., myself—what in all my shyness I didn’t have: a girlfriend. She was as pretty as my limited skills could make her. Her name was Laura.